The middle of October David and I took Lydia to San Antonio, TX for a week long study at the University of Texas Health Science Center. The Chromosome 18 Registry and Research Society paid for our trip down there so Lydia could see LOTS of doctors and have losts of examinations and tests, so they can learn more about tetrasomy 18p, and how it affects her. It was a beneficial study, but a long week for her and for us. She had to have an MRI one day, and an endocrine study the next day, and both days they had to give her medicine to make her drowsy. This pic was taken after the endocrine study. She was soooo tired. She just
slept most of the day. A few of the days we were able to sight-see. We went to the Riverwalk, downtown San Antonio, and saw the Alamo.
Lydia was so good on the plane. She got to have her own seat even! David's brother and sister in Phoenix took care of our other 3 kiddos while we were gone. Thank goodness for family!!!
2 comments:
She looks so grown up in some of these pictures. I'm glad you guys got to do some fun things.
that must of been really hard on her with all of the drugs and testing.Glad you guys got to squeeze some fun things in as well.
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